Newsletter

Each March, the National Hemophilia Foundation (NHF) calls awareness to inheritable blood and bleeding disorders. Bleeding Disorders Awareness Month (BDAM) encourages patients and families with hemophilia, von Willebrand disease, and rare factor disorders to share their lives, stories, struggles, and successes. Observed each March since 2016, BDAM focuses attention on policymakers, public authorities, industry representatives,…

From HEMAWARE.ORG | Steps for Living When you infuse, you are delivering factor directly into a vein. Your health care provider or Fidelis team member will teach you the specific steps to follow to infuse factor. Maintaining a Sterile Environment Here is some guidance on keeping your infusions clean and sterile: Clean your work area…

Your physical health is very important but so is your financial health. Unexpected expenses arise all the time so building a savings account and wisely investing your money will help develop your long-term future. So how can we help? First, let us direct you to the best insurance providers who can offer you long-term care…

For parents of children with bleeding disorders, educating your child’s school nurse and staff is important. They need to know how to best support injuries or bleeding incidents. A refresher is always a good idea even if you have been at the same school for years.   Some families find that school staff may need a…

The stress of caring for a chronically ill child can take a big toll on a marriage. Communication can breakdown easily. And it may be difficult to find someone who is responsible enough to watch your child.   Burnout, depression, resentment, and fear can take over a relationship. Add on financial issues and navigating insurance coverage,…

Pets provide a boost to physical and mental well-being. Consider these points when selecting the right pet for you. FITNESS AND NUTRITION   If you struggle with exercising, a dog may be the nudge you need to get moving. Walking is the No. 1 exercise for all ages, and a dog will make exercise a…

Psychologists are facing a record number of patients seeking treatment. They are receiving twice as many inquiries than their 2021 records. So, it’s only natural that people need to talk. If you have family and friends who are showing signs of anxiety, it’s important to talk with them. Find a time and place that is…

FROM HEMAWARE.COM Learning to self-infuse clotting factor is an important milestone. This can be an important step to a child’s independence and a big relief to caregivers. Most experts agree that by age nine, a child may be ready. Some kids may be eager to start, while others may need more time. The key…

Females afflicted with bleeding disorders often go misdiagnosed because many physicians have not received specific training to diagnose the disease. Other doctors believe that bleeding disorders only affect males. These challenges can cause a patient to feel ignored and dismissed. ABOUT VON WILLEBRAND DISEASE Von Willebrand (VW) disease is a bleeding disorder that occurs when…

Keeping your body healthy and fit all year round is vital for our wellbeing. Over the course of a week, every person should exercise a minimum of 150 minutes of aerobic exercise and practice muscle strengthening twice a week. Take a look at these winter recommendations. Low-impact skiing, sledding and cross-country skiing are all fun…

FOR RECIPIES VISIT COOKINGLIGHT.COM Everyone has their favorite dishes to serve during the holidays. We have selected a few healthy sides with added color and flavor to add to your menu. Ginger-Chile Roasted Acorn Squash | Add fresh ginger, Fresno chili and pomegranate to give a festive kick. Pan Roasted Vegetables | Mix colorful root…

Laughter is the key ingredient to every family holiday gathering! This year, try some of these fun holiday games. Break into small groups of two or more and take turns so everyone can watch. And watch the time to see which team is most successful. 1 | The Holiday Cookie Challenge Lean your head back…